Hello Everyone, tis me Donna. I managed to make a deal with the neurologist yesterday to allow me home yesterday afternoon until Monday morning when I have to be back between 8 am and 9 am, just before the neurologists show up once again.
Anyways I had a brain MRI and a spinal MRI on Friday as well as a chest x-ray in the evening. I was wandering the halls of the hospital as I did everyday to stay mobile and I ran into the neurologist who had ordered the tests and asked if he had looked at them, and he hadn't but he did look at them and came back to see me later to say the Brain Scan was normal, but the spinal scan showed a problem which he was referring to the Spinal Team.
I saw the spinal team Saturday morning and they told me I have Spinal Stenosis, which explains the numbness, and tingling in my feet, so that will be treated as an outpatient they say, so at long last I know what's wrong with my spine...........hurray an answer at long last.
As for the numbness, tingling, in my hands and unsteady gait, and muscle weakness and no reflexes in my body, I heard them mention B12 deficiency, so I got on the internet last night and looked it up...........and I do believe they are right as I have more of those symptoms than those of Guillian Barre Syndrome......so I will be printing out all the infomation and arming myself with my usual self diagnosis thingys........lol
At least it's treatable once its diagnosed.......so fingers crossed it is that.
Anyway I would like to say thank you to everyone that has emailed me (Alan has been reading them all to me over the phone) left such lovely comments and also phoned.
Many of you have asked for my home address, if you contact Jackie at
semark262@btinternet.com
she can give you my home address. I didn't want to post it on my blog as I have been getting so much spam, I'd hate for some unscrupulous company or individual to have that information.
Now it's taken me an hour to type this (so hard to do when you have no feeling in your hands and are so unco-ordinated) I am off to sit on the sofa and spend some time with Alan and Kody, and get things ready to take back to the hospital tomorrow morning, as I have no idea how long they will keep me this time.
Thank you all and I love you all for your kindness, love and warm wishes.
~hugs~
Donna
31 comments:
I'm so pleased you have been given some answers Donna and they can start treating you now!! Hope you are back with us soon and i'm sending Massive but gentle (((Hugs))) to you!!!
Hugs
Hazel xx
HI Donna
So sorry to hear that you have not been travelling so well lately.
I hope this diagnoses brings relief in the form of some effective treatment.
Hoping you are feeling better soon.
Michelle :o)
Hi Donna so pleased you have at last got some answers but even more good news is its so easily treated..take care & sending you
{{{{{{{{{{BIG SQUASHY HUGS}}}}}}}}
smiles Christine x
Hi Donna,
Glad to hear you are home for a little while. I think it's great that you have some explanation as to what you are suffering from, as you said, that way it can be treated.
I hope it won't take too long and you will be healthy again soon.
Take care, and rest.
I am sure Alan is pampering you, he was so nice to keep us updated on how you are doing,
Thinking of you
hugs
Zahreenxxx
Lovely to hear from you Donna, take care of yourself and don't do too much! Best wishes. Ruby x
Oh my gosh Donna I am so so sorry how did I miss that you had all of this going on!! At least they have seemed to work out what it is and like you say it is great that it will be treatable. I am keeping everything crossed for you girl.
Sending huge hugs
Amy xx
Pleased to hear you could come home for a while. Glad that's things are moving along for you too. Hope you can start to feel more comfortable, at least, soon. Hugs lin
WOW!! Donna hiya hun we missed you
Hope you are being good while at home and doing nothing you shouldnt be doing, but then I guess your good man will make sure of that!!
So pleased you have answers and hope that your treatment will send you on your way to a speedy recovery
sending you a big hug
Laney
I can only imagine how stressful this is for you in so many ways. I am pryaing for a speedy recovery for you.
Hi Donna,
It must be so nice to be at home, even if it is for such a short while - so nice to sleep in your own bed eh?? Enjoy your special time with the family and fingers crossed you will be back home with them real soon and well on the road to recovery!
Keep smilin hun!
big hugs
Dawn xx
Have a lovely day at home, and I do hope all goes well!
Joyce xx
Hiya Donna hunny,
So glad you are getting answers.
Glad you managed to get out of hospital - I am the exact same,they are lovely and usually so helpful in the hospital - BUT at any chance I get I will leave and go home.
Usually after I have pleaded with the Consultant!
Self diagnosis is more and more the thing these days and I get a tad annoyed at times but then again -it can save so much discomfort for you and save on too many proding tests too!
B12 deficiency sounds so minor to peeps but it is such a serious thing and effects the full body - this is a condition that basically means that your bodies reserve in your LIVER has been depleted and your body can not make anymore - A simnple injection over a period of time will balance out the deficiency and you will feel better.
The injection will be an ongoing treatment.
Get them to check your bloods for Thyroid problems too as B12 and Thyroid problems do tend to go hand in hand.
I had to ask for them to check my tests and only then did they notice that two blood tests showed a low result.
If you don't ask , they don't always notice!
All these things are treatable and manageble hunny!
NOT BY ANY MEANS a CURE but an ANSWER and an EXPLANATION make the situation a different ball game.
Wishing you relief and Answers to all your needs hunny!
I know your strong and very capable but I will be sending you lots of strength and a wish for a complete and full diagnosis!
Be strong and as you say and I also know - If you habve a plan and all the information - they have to look into it.
If you have not had a full blood screen yet ask for a FULL BLOOD SCREEN - NOT just the yellow and purple ones a FULL BLOOD SCREEN!
For an anemia test it is usually blood related but you can also be sent for a SHILLING TEST.
Thyroid test -blood
B12 - blood and shilling test
Good luck hunny
Be strong and tough on them - get the answers hunny that you need!
Take care
Big Big
Gentle Hugs
Casper
xxx
Hi Donna so glad to hear you might at last have some answers, and hopefully if youve got some information they can at least be able treat you, I do so hope its a blood thing and they can sort it out for you. Its been such a worrying time for us as we were concerned about you.
I do hope that you enjoy your few days at home with hubby Alan and Kody I bet he was as pleased as punch to see you back.
Take care love, with hugs Shirleyxx
Hi Donna, so glad to hear there seems to be an answer to all your symptoms. And I must say that this one sounds a lot better than the Guillan Barre Syndrome. I have been reading up on that too wanting to know what you might possibly have and was not amused with all the things I read about it!! So hopefully they will kick you out permanently in the coming days and give you some treatment that quickly takes aways those annoying symptoms. Big hug, Frea
Hi Donna so pleased they let you out the food is so much better at home, and pleased that they are getting closer to making you your normal self again
Hugs Kate xx
Hello Donna,
I am so glad that they were able to figure out what was wrong so that you can now be treated and feel better. What a comfort it must be to rest a home for a few days. Your Alan was wonderful with the updates on you for us. Lots of thoughts and prayers for you in the next round of treatments. Hope you are feeling better real soon!
Best Wishes,
Mary C
stop playing around Mrs. ! and get yourself back to work ! My orders, never mind the drs., :) Im being run ragged here .. lol.. you take care hunny, and hope you get all the answers and remedies asap.... thinking of you.. hugs Jackie xxx
what joy that you are home, even if for just a short time! :)
I so know what you mean about much of what you are experiencing. I haven't been able to feel my lower left arm or hand for almost a year now.... just learn how to make do. my prayers are with you still. don't give up hope! you have lots of people pulling for you. :)
take it easy and get well soon x
So brave of you to sit so long and write to us, thanks for the update Donna. I am so happy that you don't have that aweful Syndrom and that there is a treatment for you.
Hope you will be home for good soon.
Hang in there (your husband too)
Hug from Holland, Irene
I am really pleased to hear that they know whats wrong, I wish you a speedy recovery, rest up and take care of yourself
Lindsay xx
It sounds like you've at least made some progress over recent days Donna. I'll be keeping my fingers crossed for rapid improvement.
Hugs
Judi x
Hi Donna,
hope that it is what you think it is so they can help you and gett you well again!!! (difficult for me to write down what I want to say in a foreign language...) I wish you alllll the best!!!!!
gr.arjette.
Donna, was wondering how you were doing, great to hear they seem to be making progress. I will continue to think good thoughts for a speedy recovery. Take care!
take care hun...get well soon!
Its wonderful you have answers, it always helps, hope you are soon back to 100% and feeling great huggies June xx
Hi Donna, wonderful to hear from you and, such good news (ish!!). I am so glad that you can be treated as an outpatient and that a good course of B12 may bring back your feeling and steadiness. You had us worried there for a mo !!! lol
Big hugs, Sandra xx
I hope it all gets sorted soonest!
*hugs* Mags x
Yaaahhhh so glad to hear from you! Have missed you heaps. Sending you my love and hugs, and i know your self diagnosis and treatment will work Dr Donna!! lol.
Get better quick
Hugs
Tracey
xx
Oh Donna I was so sorry to hear that you were in hospital but on reading your post it looks as things are going to be ok, that is thrilling news I am so glad that you have now found out what the problems are and that they can be put right. I wish you well and I will keep you in my prayers and thoughts.
Hugs
Lorraine x
Yay your home i bet your so pleased and now it looks like they have found out what's wrong that's another Yay! i know how frustrating it is waiting for a diagnosis as hubby was seriously ill a few years back. Anyway Alan sounds like a good man looking after you so well, you take care of yourself now hun no over doing it. luv gina xx
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